At the February Suncoast Aphasia Support Group, the attendees had a lively discussion about Aphasia: The Good, The Bad, and The Ugly. We have reversed the order because who wants to end on a sour note! Can you relate to any of these? Do they describe your feelings? Here are some of the top responses:
The Ugly
· Aphasia is FRUSTRATING
· Aphasia is EMBARRASSING
· There is a loss of the old life
· There is a loss of the ability to do things that used to be easy
· The feeling is like a deer in the headlight, always
· Big emotions: mad, scared, exhausting, seriously humbled
· The feeling of wanting to give up but knowing I can’t
The Bad
· Life is slower. Listening and communication are harder
· Learning to write and live with the non-dominant side is difficult
· People don’t know or understand Aphasia
· Physical disabilities are noticeable
· People think you are stupid
· Every day is a new challenge
· When life is hard, Aphasia is worse
· Inability to do anything for my spouse like in the past
The Good
· Discovering that I am a fighter; I am courageous, brave, and strong
· Knowing there is hope to get better. And it does get better (the biggest struggle is in the beginning)
· Learning I have the stamina and energy to carry on
· Thankful that I still have my intelligence
· Learning to communicate in new ways (pictures, writing, dry-erase board, tablet, or device)
· Support and love of my loved one
· Relaxing enough to laugh with friends made through the Aphasia Community Center and other organizations
· Being able to advocate for others with Aphasia
The Suncoast Aphasia Support Group includes people with Aphasia and their spouses, families, and friends. It is as much for the person with Aphasia as it is for their caregiver. Their mission is to provide a friendly, welcoming, and positive environment for all people whose lives have been affected by Aphasia.
Organizer: Tom & Erika Boyle
Contact: boyle1115@comcast.net
Online/In-Person: In-person, no RSVP required
Cost: Free
Appropriateness: Proper for all levels of Aphasia. Co-survivors (caregivers) are welcome.
